Medications: There is no specific medication to treat FOP, but some drugs such as glucocorticoids (such as prednisone) and bisphosphonates may help to slow down the progression of the disease and reduce inflammation and pain.
Physical therapy: Physical therapy and exercise can help to maintain flexibility and range of motion, as well as prevent joint contractures and muscle weakness.
Surgery: Surgery is usually not recommended for FOP patients because surgical trauma can trigger the formation of new bone. However, in some cases, surgery may be necessary to remove the bone growths or correct joint deformities that affect mobility.
Genetic counseling: FOP is a genetic disorder, and individuals with FOP have a 50% chance of passing on the condition to their children. Genetic counseling can help affected individuals and their families understand the risk of passing on FOP and make informed decisions about family planning.
Supportive care: People with FOP may require supportive care to manage the complications of the disease. This may include pain management, assistance with activities of daily living, and psychological support.
It's important to note that FOP is a complex disorder, and management strategies may vary depending on the individual's specific symptoms and needs. A multidisciplinary approach involving specialists such as geneticists, rheumatologists, and orthopedic surgeons may be necessary to provide optimal care for people with FOP.
Reference:
Panday K, Gona A, Humphrey MB. Medication-induced osteoporosis: screening and treatment strategies. Ther Adv Musculoskelet Dis. 2014 Oct;6(5):185-202. doi: 10.1177/1759720X14546350. PMID: 25342997; PMCID: PMC4206646.

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